Glossary
Auditory Processing
Auditory processing difficulties are conditions to be aware of. They can often present among individuals who have experienced fluctuating hearing loss during childhood due to recurrent episodes of ear disease. The functional difficulties can persist even after the hearing returns to normal after the infection, as inconsistent hearing input has affected the neurological development necessary to process sound effectively. The challenges experienced are often similar to those encountered by individuals with mild hearing loss. Additionally, individuals who are Hard of Hearing as a result of early childhood ear diseases also experience auditory processing difficulties, resulting in compounded functional communication problems.
Gratuitous Concurrence
a common behaviour where people tend to say “yes” to questions, even if they don’t fully understand or agree. It means they acknowledge things without necessarily being sure about them. To communicate effectively, it’s essential to recognise this occurs and adapt our approach to meet the need of the individual person who is Deaf or Hard of Hearing so they can understand what is being communicated to them.
Whitefella
an Aboriginal English word commonly used by First Nations people in Australia to refer to non-Indigenous Australians, typically those of European, often Anglo-Saxon, descent.
The use of "whitefella" can be seen as a pragmatic and straightforward descriptor. Over time, as relationships and dynamics evolved, the term has been used in various ways, sometimes neutrally, affectionately, or critically, depending on the context and the speakers' intentions.
Trauma
Is the experience of highly distressing or frightening events that can result in psychological harm, known as trauma. What may constitute a traumatic event can differ between people, so that two people can experience the same event and one can experience trauma and the other does not. Secondary or vicarious trauma refers to trauma experienced by observing harm done to others. The experience of multiple traumatic events can result in complex trauma.
Challenges associated with trauma may occur directly after the traumatic event or much later. Some people experience ongoing challenges that impact on their ability to cope or function. With the right supports, many people recover well from traumatic events.
Many factors contribute to the higher levels of trauma that may be seen within First Nations communities. These include the impact of colonialism and racism contributing to many life and health inequities, and the ripple effect this can have on communities with closer connections to more people whose lives are cared about are impacted. The communication challenges and outcomes of miscommunication for First Nations who are Deaf or Hard of Hearing can also contribute to their experiences of trauma which in turn impacts on the capacity to communicate.
‘Shame’
fear of embarrassment is especially pronounced in collective cultures, such as First Nations cultures, where one's reputation and how others view them holds significant importance. The potential for public failure can be a reason to not engage in certain activities, as the risk of embarrassment (being shamed) is high. This concern is more likely to be felt by people who are Deaf or Hard of Hearing and is a reason why they may avoid participation in situations where the possibility of misunderstanding conversations creates a high risk of being shamed in front of others. When a person refers to ‘shame’ or ‘shame job’ as a reason not do something it is important to try to structure the engagement to reduce the risk of them being shamed.
Poison relationships
In many First Nations cultures, the practice of "poison cousins" involves avoiding direct communication with certain relatives to maintain social boundaries and respect. This tradition helps prevent conflicts and uphold modesty within communities, reflecting a deep commitment to community harmony and structured social relationships. It's a culturally significant way to ensure that family interactions are respectful and appropriate, supporting both community cohesion and individual dignity.
Humbugging
when someone asks for too much or makes unreasonable demands for money, drink, cigarettes, food, household items, cars etc from their family or community. It’s different from the positive practice of sharing resources within Aboriginal and Torres Strait Islander cultures. Instead, humbugging can lead to stress, arguments, and even abuse. This situation (being humbugged) can be particularly difficult for First Nations people with disabilities, who, often have a strong desire to fulfill their cultural responsibilities like other community members, find it hard to know how to refuse such demands.
Hand talk
Many communities have a sign language or hand talk (sometimes called action) that compliments their local spoken language. In these communities many in the community may be able to use sign language to communicate with deaf community members. However, as with oral languages these are diminishing and often Deaf community members can only communicate with a few family members using family hand sign with elements of community sign.
Countryman
"Countryman" is an inclusive term used by some First Nations people to indicate their deep connection and responsibility to their land. It underscores a unique relationship that sets them apart from non-First Nations people, who may not share the same sense of belonging, affinity, or duty to the Country. This term highlights the profound bond First Nations people have with their land, which is central to their identity and cultural responsibilities.
Behaviours of concern
Behaviours of concern are actions displayed by individuals that might be disruptive, harmful, or challenging to themselves or others. These behaviours often occur when someone is unable to communicate their needs, feelings, or frustrations in more typical ways. They might include yelling, hitting, or refusing to follow rules or instructions. The goal in addressing these behaviours is to understand what the individual is trying to communicate through their actions and to find more positive and effective ways for them to express their needs and desires.
People’s mind and body can become fatigued from trying to cognitively process too much visual and auditory information. In turn, this can influence our behaviours. People might just say ‘I’m tired now’ or you may notice more significant changes in behaviours. Indeed, a really common factor contributing to avoidance is cognitive overload.
Here is a quick checklist to help you recognise signs of cognitive overload. People may exhibit some or all of these signs.
- Visual fatigue: eyes rolling, frowning, rapid blinking
- No longer watching intently
- Dry eyes: rubbing eyes
- Inattentive: looking out the window, down to the floor or using technology such as an ipad
- Less eye contact with others
- Less face watching when instructed to ‘pay attention’
- Leaves the room
- Stops using hand gestures or sign language.
- Tapping the floor with foot or shaking legs
- Moving around in seat
- Seeking food
- Going to the toilet a lot.
People with hearing loss often need to think more to communicate
Hearing loss means people need to juggle thinking about many things to communicate well
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Anything that takes away from the ability to focus thinking hurts communication
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Things such as physical ill health, stress or anxiety can make communication hard
Understanding a constant ‘No’ - Sometimes, people just need more time to process information.
One avoidance strategy you may see is someone saying ‘No’ or refusing to participate in any activity they are not sure about. This may relate to hearing loss and communication uncertainty. Saying ‘No’ to an activity may also be to avoid failing or feeling shame.
It may also be an automatic response when someone is uncertain or confused about what is being asked of them. A ‘No’ can also mean that the person has not had time to process what has been asked.
Here are a few tips to overcoming ‘No’:
- Prepare the person to better understand what is being asked.
- Use visual aids to help describe what is being asked.
- Give people time to process what has been communicated then work out what they want to say.
- Demonstrate what is first, i.e. if you need someone to have their blood pressure taken, then demonstrate your blood pressure being taken first.
- Engage a Communication Broker to help unpack more complex concepts.
Learn More
Managing and juggling multiple sources of information can contribute to attention burden and overload. Have a look at the table below to learn more about what helps reduce attention burden and vice-versa.
Cognitive overload tips
| What helps reduce cognitive burden |
What adds to cognitive burden |
| Engaging with known person |
Engaging with stranger |
| Orientating person to what is being discussed
This may involve telling stories about others to cue the ‘indirect questioning’ which provides a shame free questioning (https://www.health.qld.gov.au/__data/assets/pdf_file/0021/151923/communicating.pdf), providing visually rich stories that help explain context of discussion. |
Direct questions about self with no orienting information – typical surveys. See more info the trouble with surveys |
| Plain easy to understand language in story format. Stories help to put things in real life context. Link to story-based questioning – a tale of two reports. |
Questions containing many words not known (as standardised* unadapted surveys). Surveys ask de-contextualised questions that require the participant to re-orient themselves about the changed topic in each question mainly by understanding the language of the question. |
| Picture cues that help to illustrate what is being spoken about. |
Verbal or written words alone |
| Face to face engagement |
Engagement over the phone or in written form such as surveys. |
| Visual environment that is not cluttered with no guide to what is important to attend to in an environment. |
Too busy visual environment without guide to what to attend to. |
| Good lighting – well lit, no glare |
Too dark or too much glare |
* standardised processes are much used to make systems seem streamlined and fair. But if the respondent is not the standard person it was designed for (usually hearing and standard English speaking) the outcome is often processes that exclude – especially First Nations people who are Deaf or Hard of Hearing.